I just did a Glu survey last week and I'm still feeling disgruntled. There was no feedback form and it was written HORRIBLY and unlike most of the surveys I take there wasn't a "write to plony almony with comments or complaints" at the beginning plus as the consent form says, it's a commercial thing for profit.
And this is of and for the diabetes community?! Screw that. I'm not filling out any more glu surveys.
A blog in which Jonah is a diabetic: contains anecdotes, reflections on studies, musings, related and unrelated medical details.
Monday, March 16, 2015
Sunday, March 08, 2015
On Friday I got back on the Dexcom.
On Saturday, after fifteen months of pumping, I took off the pump and started on NPH (with R).
So far, my thoughts:
1. I NEED to get a vial protector to put on one vial because the N and R look way too similar. Feel too similar too.
2. Wow is it ever nice to get undressed without pulling on tubing.
3. Too bad I can't do corrections by just pressing a button.
4. I haven't figured out how NPH works in my body yet. I keep jumping to guesses that are proved wrong within hours.
On Saturday, after fifteen months of pumping, I took off the pump and started on NPH (with R).
So far, my thoughts:
1. I NEED to get a vial protector to put on one vial because the N and R look way too similar. Feel too similar too.
2. Wow is it ever nice to get undressed without pulling on tubing.
3. Too bad I can't do corrections by just pressing a button.
4. I haven't figured out how NPH works in my body yet. I keep jumping to guesses that are proved wrong within hours.
Wednesday, March 04, 2015
Thinking about active insulin
On the Minimed 530 G, if I go to Basal Review, Standard Basal (11.35 u total), it looks like this:
Which looks much more like a smooth rise from 2 in the afternoon until three in the morning, and a drop from five in the morning until about nine in the morning.
1)00:00 0.850 U/H
2)05:30 0.200 U/H
3)14:30 0.450 U/H
4)20:00 0.600 U/H
If I pretend that Regular (which is the insulin that I pump) is equally active in the hour that I get it and the subsequent three hours, then the amount of basal insulin lowering my blood sugar in each hour is:
0000-0100) 0.6625
0100-0200) 0.7250
0200-0300) 0.7875
0300-0400) 0.8500
0400-0500) 0.8500
0500-0600) 0.7688
0600-0700) 0.6063
0700-0800) 0.4438
0800-0900) 0.2813
0900-1000) 0.2000
1000-1100) 0.2000
1100-1200) 0.2000
1200-1300) 0.2000
1300-1400) 0.2000
1400-1500) 0.2313
1500-1600) 0.2938
1600-1700) 0.2563
1700-1800) 0.4188
1800-1900) 0.4500
1900-2000) 0.4500
2000-2100) 0.4875
2100-2200) 0.5250
2200-2300) 0.5625
2300-0000) 0.6000
Which looks much more like a smooth rise from 2 in the afternoon until three in the morning, and a drop from five in the morning until about nine in the morning.
Sunday, March 01, 2015
7 Prescriptions And What Became of Them
I went to the endocrinologist recently and got six prescriptions:
- Novolin R, as usual.
- 6 Relion Prime test strips per day- as usual.
- Syringes, for when I go off the pump, because the jet injector company appears to be out of business.
- Novolin N, to give a try.
- Glucagon, because the only ones I had were expired.
- Multiclix drums, because I ought to change my lancet every now and then.
Then I took the prescriptions to Walmart. Here's what happened:
- Insurance covered it but paid nothing. I paid $75 for three vials.
- Insurance denied saying I needed prior authorization for such a large number. Also, that step testing was required. Paperwork was faxed to the endo. Does this make sense? No, particularly not given that my plan's formulary specifically states that PAST six per day, prior authorization is needed. I did not fill this 'scrip
- Insurance covered but did not pay. So I bought just two boxes.
- Insurance covered but did not pay. I bought one vial for $25.
- The pharmacy had none in stock. As it turns out, insurance covers this and pays most of the cost, leaving me with $30 to pay should I ever fill the prescription.
- Insurance paid 100%. I paid nothing for lancets.
Somehow this whole business seems backwards to me. They'll pay for the glucagon and lancets, which I could arguably do without, but not the insulin, syringes, or test strips?
I also called Dexcom last week to ask about getting insurance coverage to buy a new system. They left me a voice mail message saying that it's covered and I just need to call them back and approve it. Of course, I want to know how much insurance would leave me to pay, given that it has covered but left me with the full cost of most of my prescriptions so far!
In other news, I am now eight and a half years past diagnosis. My eyes still see, my heart still beats, my kidneys are making urine aplenty, and my feet are both still attached.
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