Tuesday, August 31, 2010

The Fight To Survive by Caroline Cox

Every now and then I go to the library's online catalogue and I search "diabetes biography". This brings up about 20 books, including biographies of ten people (nine diabetic): Mary Tyler Moore, Frederick Banting, Ron Santo, Deb Butterfield, Zippora Karz, Nicole Johnson, Denise Bradley, Andie Dominick, Lisa Roney, and Elizabeth Hughes.

Now, all nine of these people were diagnosed long before I was, but Elizabeth Hughes was diagnosed long before anybody reading this blog was. Elizabeth Hughes was diagnosed with diabetes in 1919, when she was eleven years old. In 1919, you couldn't get a prescription for insulin. You couldn't get in a research trial and be given insulin. In fact, you plain old couldn't get insulin, unless you made it with your own damn pancreas.

Which is what she did. Using the method of eating until you peed sugar, then not eating until you didn't, she lived on the insulin she made herself, growing smaller and smaller, weaker and weaker, until she went on insulin in 1922.

I checked out The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin by Caroline Cox a week ago and read it through pretty quickly. I wanted to read a book about diabetes that was different. I wanted a book to make me want to celebrate injectable insulin (four years, whoop!). I wanted a book that wasn't about a celebrity or a role model.

This book is about a celebrity though; just not a celebrity of of the twenty first century. Elizabeth Hughes's father ran for president on the Republican ticket and was also a supreme court judge. During the years of her illness, her family was rich enough to hire a personal nurse for her, and they sent her to Toronto to go on insulin. And while this book doesn't really attempt inspiration, particularly not "living with diabetes inspiration", it is an attempt to understand how a preteen and teenage girl starved herself despite not being anorexic. How she managed to enjoy life in some sense at that time.

But I liked it. I liked the way that this book talks about the discoverers of insulin. Their story is told in little snippets parallel to Elizabeth's and while at first it was losing me in biographical detail, soon the details (juicy!) had me taking notes. Did you know that Banting was alcoholic? Did you know that after producing insulin and injecting it in a few patients, they had to stop because they didn't remember how to make more? And I liked Elizabeth herself, despite the fact that her experience did not have much to do with mine, as she didn't really have a lot of diabetes symptoms other than sugar in her urine. This book is really only about those years which she later wanted to forget (I can imagine wanting to put starvation behind you!). I didn't like the bits in which Cox attempts to look at the current diabetes situation, and I believe that her mortality statistics contradict what I read elsewhere. But that's not the book.

This is a book about living with diabetes without insulin. This is a book about heroes who did not behave heroically. I recommend this book because it will challenge your ideas of the history of diabetes.

Sunday, August 29, 2010

On Thursday I visited the endo, and got weighed and had blood drawn and talked and had my feet checked (still having problems feeling vibrations). My weight is 101 lb, which represents no real change over the summer. My vitamin B12 level (which I had drawn because I am a vegan) was in the mid normal range. My vitamin D came down from 97 to 32.6; I suppose we can retest in a few months. The celiac stuff was all normal. The A1c came in at 6.6%. I decided to look at my A1c history. Here it is in a graph: http://nces.ed.gov/nceskids/createagraph/default.aspx?ID=43046429fea34dd08eb29bc32c254686

FedEx says my Dexcom is currently in Memphis. I am impatiently awaiting its arrival!