Monday, October 11, 2010

Dexcom Data To Date

Target Chart

Date

% in Target

% in Low

% in High

# of Readings

Min

Mean

Max

Std. Dev.

25%

Median

75%

IQR

Est Std. Dev.

SE Mean

%CV

Wed, 9/1/2010

80 %

6 %

14 %

83

49

110

203

40

78

99

144

66

49

4

37 %

Thu, 9/2/2010

67 %

16 %

17 %

284

39

117

307

57

81

109

140

59

43

3

48 %

Fri, 9/3/2010

90 %

1 %

9 %

281

58

105

191

32

79

95

128

49

36

2

30 %

Sat, 9/4/2010

64 %

4 %

32 %

285

53

128

218

45

89

121

167

78

58

3

35 %

Sun, 9/5/2010

86 %

1 %

13 %

246

58

119

189

30

96

113

141

45

33

2

26 %

Mon, 9/6/2010

44 %

0 %

56 %

267

66

151

214

34

128

159

171

44

32

2

23 %

Tue, 9/7/2010

58 %

17 %

24 %

287

41

125

233

48

79

134

155

76

56

3

38 %

Wed, 9/8/2010

78 %

0 %

22 %

260

73

136

188

27

118

138

151

33

25

2

19 %

Thu, 9/9/2010

44 %

0 %

56 %

282

74

160

219

37

131

163

193

63

46

2

23 %

Fri, 9/10/2010

74 %

0 %

26 %

286

91

144

253

42

117

128

158

41

30

2

29 %

Sat, 9/11/2010

65 %

0 %

35 %

282

83

140

197

30

120

145

162

42

31

2

21 %

Sun, 9/12/2010

37 %

0 %

63 %

279

68

159

242

43

133

174

186

53

39

3

27 %

Mon, 9/13/2010

36 %

0 %

64 %

277

73

161

233

36

145

163

184

39

29

2

22 %

Tue, 9/14/2010

80 %

6 %

14 %

284

55

115

170

32

89

115

143

54

40

2

28 %

Wed, 9/15/2010

61 %

18 %

21 %

262

47

113

267

48

76

99

143

67

49

3

43 %

Thu, 9/16/2010

58 %

4 %

39 %

285

59

164

311

80

100

135

246

146

108

5

49 %

Fri, 9/17/2010

25 %

0 %

75 %

154

75

173

253

53

158

183

206

48

36

4

31 %

Sat, 9/18/2010

0 %

0 %

0 %

0

0

0

0

0

0

0

0

0

0

0

0 %

Sun, 9/19/2010

39 %

5 %

56 %

140

39

150

260

54

100

165

189

89

66

5

36 %

Mon, 9/20/2010

75 %

0 %

24 %

274

64

137

261

40

114

135

155

41

30

2

29 %

Tue, 9/21/2010

54 %

0 %

46 %

279

65

149

258

43

117

148

182

66

49

3

29 %

Wed, 9/22/2010

51 %

0 %

49 %

284

72

156

240

39

121

155

188

67

50

2

25 %

Thu, 9/23/2010

74 %

4 %

22 %

280

56

129

257

40

103

127

147

44

33

2

31 %

Fri, 9/24/2010

65 %

0 %

35 %

281

82

159

275

45

132

143

176

44

33

3

28 %

Sat, 9/25/2010

75 %

9 %

16 %

280

39

125

255

42

94

131

141

47

35

3

34 %

Sun, 9/26/2010

74 %

0 %

25 %

220

63

128

215

38

98

120

157

59

43

3

30 %

Mon, 9/27/2010

91 %

7 %

1 %

272

56

104

186

26

84

103

122

38

28

2

25 %

Tue, 9/28/2010

62 %

2 %

35 %

218

60

135

209

44

89

139

167

78

58

3

32 %

Wed, 9/29/2010

41 %

15 %

43 %

198

39

139

245

63

80

139

199

118

88

4

45 %

Thu, 9/30/2010

78 %

8 %

15 %

185

50

114

200

37

87

106

148

61

45

3

32 %

Fri, 10/1/2010

99 %

0 %

1 %

268

72

111

166

19

96

108

123

27

20

1

18 %

Sat, 10/2/2010

30 %

4 %

66 %

171

48

182

296

65

139

178

239

101

75

5

36 %

Sun, 10/3/2010

62 %

6 %

32 %

191

52

134

233

40

108

134

161

53

39

3

30 %

Mon, 10/4/2010

73 %

0 %

27 %

15

92

135

251

50

100

113

150

51

37

13

37 %

Tue, 10/5/2010

70 %

1 %

29 %

168

62

139

310

54

102

132

161

59

44

4

39 %

Wed, 10/6/2010

81 %

0 %

19 %

253

66

126

193

32

101

126

148

47

35

2

26 %

Thu, 10/7/2010

83 %

0 %

17 %

228

85

133

220

25

115

128

148

33

24

2

19 %

Fri, 10/8/2010

81 %

0 %

19 %

201

65

123

217

41

93

117

139

46

34

3

33 %

Sat, 10/9/2010

53 %

1 %

45 %

280

60

156

256

49

121

149

196

75

56

3

31 %

Sun, 10/10/2010

86 %

2 %

12 %

282

57

116

192

31

91

115

140

49

36

2

27 %

Mon, 10/11/2010

75 %

0 %

25 %

124

67

135

217

39

101

129

155

54

40

4

29 %



The total number of readings for this period is 9476. My average glucose in that time is 136 (134 for just October). I've set the target range for this chart as 65-155. The green indicates the first sensor, blue is the second sensor, yellow is the third, orange is the fourth, and dark purple is days with overlap of sensors. The fourth sensor has had three or four nights where it was ??? for a while or even the whole night. Sensor 4 is still in use and I'm hopeful that the next box is on its way.

Sunday, October 10, 2010

I just really, really, really wanted to point out this response to a question on CWD:
http://www.childrenwithdiabetes.com/dteam/2010-09/d_0d_fsa.htm

Because it's totally right.
I'm a little surprised that the child in the article was diagnosed young, since I'd've thought having parents be in charge of the diabetes at some point would translate to more parental involvement later on, but I think it's really common for those of us diagnosed ages 10-20 (or even slightly younger) to be burdened with all or almost all of the diabetes care from the get go in a way that presents a challenge almost impossible to meet with an additionally intense sense of isolation and a further distancing from parents (as in, one more way they'll never get me).

Monday, October 04, 2010

End Sensor 3

That third sensor was being a pain. It gave me good numbers for about 14 hours then went ??? and intermittently gave me okay numbers.
At 4:30 this morning, I woke up from a bad dream, checked the Dexcom (it was saying "???" but had been saying something like "steady at 100" as of about 20 minutes prior) got up, went to the bathroom, washed my hands, and climbed back into bad. Only as I was going over the side, the sensor ripped most of the way off of my leg. I turned on the light to take a look, and it appeared to be out; I tore it the rest of the way off, then tried to go back to sleep. I was half glad it was out because it had been hurting so much.

I spent most of the day without a sensor (I survived) and about fifteen minutes ago put in another one. This one is on the side of my left leg (same leg) much further up, about three inches from my butt. It hurt very little going in but a little bit when I stood up. I put this one on so that the needle was pointed straight inwards when I was sitting; the sensor is pointed sideways if I stand up. I hope this position is more secure, and I hope this put it more successfully into fat. I will let you know.

Sunday, October 03, 2010

I wore the second sensor for thirteen and a half days. It was nowhere near as good as the first sensor. The first two days were inaccurate. Five days of pretty good function followed. So I restarted the sensor. And oy! After that it seemed like there was ??? as often as there were numbers, although what numbers there were, were accurate. I wore it in my abdomen and wonder if this made the difference.
Last night I pulled the sensor (while it was ???ing), took a long bath, and then, with my mother's help, inserted the third sensor. It is in my left thigh. We debated whether to put it going up and down or sideways. I think maybe we should have done sideways but we put it so that it runs lengthwise on my leg. It hurt going in, and the muscle area there is tender. I am kinda limping. In the twelve hours or so since it started reading numbers, there have been a lot of ??? areas, although when I calibrated it this morning, it was only 2 mg/dl off of what the meter said.
I will post a chart in another week when I next upload my Dexcom data, and it will be very obvious how much better the first sensor performed. In 16 days of the first sensor, I got a minimum of 246 readings per day. Now? No way!

My blood sugar meter average is up but I'm really hoping that's because of what time of day I've been calibrating, and when I'm choosing to double check the Dexcom (ie, when I need a largish correction).

Sunday, September 19, 2010

Yom Kipper.

This Yom Kippur I:
  • Spent a day in services praying, during which I felt connected to what I was saying.
  • Layned both the morning and evening readings and was congratulated on reading well by so many people that I think I believe them.
  • Read a book that helped my thoughts go where they ought to have (Mitch Albom's Have Little Faith)
  • Composed a poem/prayer, which I wrote down afterwards.
  • Fasted.
  • Talked to interesting people.
But unfortunately, this was my first fast day in which I ran more than trace ketones. I brought (or actually, gave the Rabbi on Friday to bring so that I'd have them on Saturday) urine ketone strips, foil wrapped. I used them in the synagogue and they changed to deep purple as soon as they touched the urine- fifteen seconds did nothing to the color. I didn't have the comparison chart but suspect that means very large urine ketones.
I'm pretty sure I know how I goofed- I meant to run high, but I ran too high. I lowered my Lantus dose too much , and I didn't correct as frequently as I should have. I think wearing the Dexcom exaggerated in my mind the risk of going low. I'm not sure exactly why I think that.
I also think I got the impression that I didn't get ketones easily from checking them a lot when I was a bit newer to diabetes and always having them negative, and that possibly the length of time that I've had diabetes makes me more likely to get ketones now.

Once I got the ketones, I wasn't even sure what to do, other than get more aggressive with my highs, and ended up still holding out to the end of the fast. I'm not sure where my ketone strips have gotten to now, but those ones were expired anyways. I'm going to go buy some new ones in the morning. My blood sugar came down, by the way, and I went hypo (47) around midnight. That's why I'm still awake to write this post.

Friday, September 17, 2010

End First Sensor

It was still functioning pretty well, but after 16 days of use I decided to take it out because it was starting to really itch, the adhesive was off enough that the sensor was partly out and that hurt, and it's going to be Yom Kippur in a few hours and I don't want to be wearing it on Yom Kippur.
The place where the sensor was looks like a red irritated dot, a slightly scaly, slightly red patch around it, and a sticky but otherwise normal ring around that. I'm going to take a bath soon and then maybe it will look nicer.

This first sensor was in my upper left arm. I'm hoping to put the second sensor into my abdomen, on the left side, on Saturday night or Sunday. I'm going to wait for a time when my stomach doesn't hurt much. I don't do shots in my stomach when I have much stomach pain or nausea and I'm not going to insert a sensor during a time when that area is already in pain. If by Monday morning I haven't had a pain free opportunity for insertion, I'll put the sensor elsewhere. My thigh, maybe.

Have a wonderful, meaningful, prayerful Yom Kippur and an easy fast.

Thursday, September 16, 2010

Sunday, September 12, 2010

Further Thoughts on Dexcom (Still on First Sensor)

The little charge icon on the dexcom, the battery picture, has three bars when full. I get this. When I plug it in and leave it plugged in, the number of bars goes up after a while. I get that.

What I have learned: I recharged the Dex on Wednesday around noon. I did not want to be charging it on Rosh Hashana or Shabbes, which makes for a seventy three hour stretch (I'll have two more such stretches). I was not sure if it would last. Here's what happened: I woke up on Thursday still with three bars, but early it went to two bars. Friday morning I had one bar. Saturday morning I had one bar. Saturday late morning, the one bar started blinking, and I tried to minimize use, but I still had alarms go off and checked it and so forth. Saturday evening when the sabbath ended, it was still blinking one bar.
And that charge up was the quickest yet!

Question: Is there any way to know if the Dex is fully charged when it's charging? Is there anything it does to say it's done, or is the only way to check by unplugging it and taking a look?
Also, any expertise on what makes a charge last longer or go faster? Is it better to charge it when it's at two bars or a blinking one?

I did locate the dexcom website's demo on their software. You can, very blurrily, preview what happens with the software. On Tuesday I'm going to my dad's office where he has a computer running Windows.

I have had one more ??? episode, but it lasted less than an hour and was this morning. Of all the calibrations I've done so far, about half have been within 2%. All but one were within 20%. That one was about 75% off. I think this is overall very good.

The number of fairly flat lines I've seen on the three hour graph fairly well takes my breath away. Of the flat lines I saw on the Guardian in 2008, almost all were due to sensor failure. I saw maybe two legitimate flat lines lasting over an hour in over 100 days' worth of sensor wear. I suspect that this means that I now have more possibility of getting the blood sugars I want, even though I had been assuming that things were getting worse with my body.
I'm also seeing more meal time spikes (I saw almost no meal time spikes on the Guardian) which I think is probably good news about my digestion, but maybe due to a change in diet, of eating lower fat these days.

Wednesday, September 08, 2010

Diabtes Meme

From Kerri by way of Dorkabetic



What type of diabetes do you have: Type 1

When were you diagnosed: September 1, 2006.

What's your current blood sugar: Dexcom is reading 113 with a slow rise, and my last Accu chek aviva reading, almost three hours ago, was 102.

What kind of meter do you use: Accu-Chek Aviva and Dexcom. I've used samples of various meters and for a study once used a One Touch Ultra for a month.

How many times a day do you test your blood sugar: Pre-Dexcom, I was averaging 9x per day. This past week, it's been about 4x per day plus up to 288 readings from the Dexcom, which I look at frequently. On the Guardian I got down to 3x per day... maybe soon.

What's a "high" number for you: Anything over 155 is a "little high," over 200 is "high" and over about 280 is "really high". Over 350 is "really really high" and makes me upset and angry.

What do you consider "low": 60 is where I consider myself low regardless of symptoms. Above that, if I'm dropping rapidly or under 80, if I'm symptomatic, I'm low.

What's your favorite low blood sugar reaction treater: Soft mints. I also like to mix water and juice (and 5:1) in a water bottle to drink while walking to deal with hypos in a sort of prophylactic way.

Describe your dream endo: Always has time for me, knows about multiple endocrine issues, willing to run tests, no blame, keeps up with products, always remembers what's going on with my help. Follows up promptly. My endo is pretty good.

What's your biggest diabetes achievement: Not letting go of my blood sugar even through the pain of gallstone pancreatitis, or maybe keeping up with my insulin needs as they have changed by a factor of ten.

What's your biggest diabetes-related fear: That I won't be able to work due to health stuff, and that I will adopt kids only to die or be too exhausted to care for them while they're still young.

Who's on your support team: Carrie mostly, but my family and the folks online too.

Do you think there will be a cure in your lifetime: Depends on what a cure is defined as. Sometimes I'm not sure we don't already have it, in some sense, in the pancreas (and islet cell) transplant. I think the odds of a functional artificial pancreas in the next ten years that really and truly manages diabetes are slim to none. I do not care about that really. I think it's much more important to maximize what we have now, diabetes wise.
I think that it's extremely unlikely that thirty years from now, nobody will be dying of diabetes.

What is a "cure" to you: Something that takes ALL of the pressure of managing diabetes off of the diabetic, and maintains good enough blood sugar and diabetes complications cannot happen. I'm not convinced that blood sugar control alone is enough to prevent complications (maybe c-peptide is also needed), but whatever is needed to prevent complications, the "cure" has to provide it.

The most annoying thing people say to you about your diabetes is: I'd rather die than have to do that.

What is the most common misconception about diabetes: That blood sugar control is a matter of personal control.

If you could say one thing to your pancreas, what would it be: Ssssh. You're okay.